Why It Changed After June 15, 2008

In those summers in I was a student of BS Computer Science, my 8 semesters came to an end and I was successfully working on my project. I was the only one working on my project alone because all my class fellows think that it was a difficult one.

It was Sunday and we went to a neuro doctor in his clinic as he told us to do an EMG test. It was a bit shocking because the doctor told us that this is an illness and it will increase with time. Till that point I just have to use AFOs in shoes and to go through some corrective and diagnostic surgeries. That day was something that diverted my life around a pivot. I remember coming home with helpless eyes. I remember going to university the other day and sharing with my friends, it was as if colours went out of my life. It was like a sword hovering over my head.

After that I started meditation by the same doctor; it was an injection and a folic acid tablet. Doctor told that with medications we can try to improve the symptoms but the disease itself is not curable. On Sunday before my test turn there was a small little girl whose test was done before me, I couldn't hear to her cries because it reminded me of all treatments that I went through in childhood. In those years I couldn't look at patients while going through an orthopedic OPD because it reminded me of my past journeys.

I was under medication of that neuro doctor till 2009. I remember my aunt introducing me as I have high academic record and many distinct things except this illness challenge. I sometime feel myself as alien because they way I think and my intellect is very different from everyone.

Then a bad thing happened that doctor was a Pakistani American doctor unfortunately he stopped visiting Peshawar due to clashes with the hospital he was taking clinic in. It was a huge void, I have to struggle alot to find a proper doctor. In January 2009 I enrolled in my MS, I had some difficulty in concentrating and doing my studies but am not sure if it was part of the disease or it was due to stress.

In 2011 I fell three times on ground without having any clue what happened. End of 2011 I went through a spiritual treatment and we thought it will ease my walking problem. In 2012 I got job at Ghulam Ishaq Khan Institute of Engineering Sciences and Technology as Computer Programmer. I used to work in Faculty of Computer Science and Electronic Engineering.

After Ramzan of 2012 I used to have heart beat problem and faintness in head. One of my friend whose father was doctor told me that I should not take it light and should consult doctor. During that time I showed to a Neurology Head from PIMS Islamabad. It wasn't a good experience, the medication was more and they were expensive. My father was like I should stop this treatment but I didn't have much options.

The hardest thing of my life after 2011 was that it drew away from my family. The thing I was suffering from was unique like even you can't find doctors to understand and treat it well. So alot of messed up emotions, I couldn't explain them how it felt like. 

In end of summers of 2013 I used to have a headache and that used to make my body 40% unconscious. Journey of illness is difficult but it's far more difficult if you don't find treatment options around. I tried to search doctors' panel of Shaukat Khanam Hospital to help me connect to some proper treatment. Luckily I found a Neuro Surgeon on their website, his name was Dr Kamran Hussain and I never saw such competent profile ever before. Hospital staff told us to fax or TCS my medical documents so Doctor Sab can study my case, but later they told that he couldn't understand the exact problem so better if we visit Lahore at his clinic because non cancer parents it's not good to visit cancer hospital and be part of that environment. In September 2013 I visited Lahore along with my father.